Friday, November 11, 2016

Day 10 of fever

Yesterday they gave M the antiviral drug, cidofovir. However, his fever did not go down today and he still hasn't improved.
Later, the rheumatologist is coming to assess him to see if he needs another dose of IVIG for the Kawasaki Disease.
We keep expecting to see improvements in him and his fever, but we keep bumping into walls and nothing seems to be working.
I am at a loss. Don't know what to think, don't know what to say. It seems as though he's slipping through our fingers but that's just the pessimist in me speaking. I am so scared. Scared beyond words. I keep thinking the worst although I know I'm supposed to stay positive. I just pray the Lord will be merciful to my firstborn, my one and only, and heal him.
To the Lord, it is as simple as lifting his littlest finger but to me it means the world.
Please God. Please.

Thursday, November 10, 2016

Our journey with Kawasaki Disease and Adenovirus

It started off simple enough, M had a cough and runny nose. The cough was not significant so I didn't think too much of it. Over the week it got worse. Finally on 31 Oct (Monday), the hubs suggested we bring him to the PD. Doc said no wheezing in his lungs so we were sent home with zyrtec and terbutaline.
On Thursday, M's childcare called me to tell me he was running a fever of 37.9 degrees. Brought him home and over the next few days, his fever went up and down. Going as high as 39.4 and as low as 37.6.
On Sunday, having seen his fever continue to spike over 39, we decided to bring him to KKH A&E to do blood test. A chest xray was also done. Doc mentioned he seems to have a bit of lung infection, so we were sent home with antibiotics.
On Monday (7 November), he slept and slept and slept. I brought him back to A&E and he was promptly admitted for lung infection.
On Tuesday, we were informed he has adenovirus, which is a common enough virus and gives people a cold/flu, but it hit M harder than usual. So it has infected his lungs.
Over the next few days, he just continued to deteriorate in front of our eyes. He would sleep for hours on end, wake up but just lie there. Didn't want to eat or drink. It was extremely painful to watch.
On Thursday, doctors confirmed he has Kawasaki Disease, and recommended he be given a dose of IVIG. The dose ended today (Friday 11 November) at 2am. His fever, however, did not subside like it was supposed to. He did not make any significant improvements like other KD patients.
Blood test was done again and his inflammatory markers have gone up. His lungs sounded worse than before. His fever is still lingering around 38.5. Now we are waiting for the blood test for adenovirus count to come back.
Either way it's not looking good for M simply because he is not showing any sign of improvement. Either they are going to start antiviral drugs (that can cause toxicity to his kidneys) to control the adenovirus, or they are going to give him another dose of IVIG.
It's really really painful to watch. To watch him be this sick, this sad. I hope he's too young to understand why he is going through all these poking and feeding of medications. I hope these things done in the hospital has no lasting effects on him.
I want to have my happy M back...I've prayed a lot and am holding on to faith with dear life. Because that's the only thing I have left. I try to tell myself God will heal him in His time, but I can't help crying buckets everytime I see him and remember my happy boy...

Wednesday, February 3, 2016

Wow

It's been really long since I've written here. I seldom have time for myself these days, what with work and baby M.
Baby M is 11 months old! Time flies and he's gonna be 1 in 2 weeks' time. So amazing. He has been amazing and it has been an amazing journey so far.
What's more amazing is that I am expecting baby no 2...we planned for it, but didn't expect a one-time bingo. I am now 5w2d but this time round I am more slack..planning to go gynae when I am around 8 weeks...
Part of me still lives in denial and can't believe the fact that I am pregnant. The other part is ecstatic that I'm dying to reach 3 months so I can tell the world :D

Thursday, July 9, 2015

Things DO get better

Everyone told me things would get better and yes I believed them.

Like, baby M has finally learned to sleep through the night. Actually he managed that from 3mths + onwards. Though he would still stir during his sleep at night so I still wake up maybe once or twice to pat him back to sleep. The longest stretch of non-interrupted sleep I had was 5 hours and it was such a treat.

Baby M is smiling more, laughing more, making funny sounds, screaming, rolling over these days. He's a joy to watch. It is amazing to watch him grow and pick up new skills, or reach new developmental milestones. I remember the hubs and I were so amazed when he first learned to roll over. Nowadays we are wishing he would roll over less though lol.

However, baby M has been drinking less and less milk. We used to feed him 170ml every 3 hours, but these days he doesn't finish the 170ml at one go like he used to. Instead, we have to separate it into 2 feedings (within 1 hour). Most times, he finishes the remaining during the second feed but there would still be times when he wouldn't. We've also started stretching his feed to 3.5-4 hours. Mainly because he just doesn't seem hungry. We are actually quite puzzled over this as well and would want to check with the PD at his next vaccination.

What is comforting is that he's still gaining weight (he's a proud 9.1kg baby at 4 months 3 weeks!), pooping regularly (once a day) and playing/laughing/smiling as usual. So I'm not too uptight.

I'm back at work so will get a chance to blog more in future. Moving to new house soon though so gonna be busy for a while! Once baby M starts his solids when he touches 6 months, I suppose there would be tonnes of things to share and review! :)

Friday, June 5, 2015

What no one told you about motherhood

When people talk about their children, there's a sparkle in their eyes, a lift in their steps and a smile at the corner of their mouths. As Baby M approaches the 4 month mark, here's writing down what I wished someone told me about motherhood.

1. It's a lonely journey.
I have friends who have children. In fact, my closest girlfriends all have kids. But somehow when you are awake at 3am in the morning, it just seem like it would be rude to start whatsapping them. There would be worries, and I am not the kind of person to bug others at every small little thing. So you keep your worries to yourself and google like your life depended on it and end up scaring yourself silly.

2. You CAN over-google.
Google is my best friend. It still is, though now I've learned to take everything it says with a pinch of salt. Baby M's front fontanelle was a little sunken in. Concerned, I asked Google. It replied that baby was probably dehydrated which scared me shitless but ended up baby is quite well-hydrated and it is perhaps somewhat normal for the fontanelle to be a little sunken in (and pulsing).

3. It's scary.
Before Baby M came out I rehearsed in my mind and thought it didn't sound all that difficult. After all, there are billions of mothers in the world, how hard can it be? The truth is, when you are faced with a shrieking, wriggling, red-faced angry baby, it can be frigging scary. You start wondering what you are doing wrong, is the baby having a fever, is he in pain, does he hate me etc.

It's worse if you have an unsupportive other half who doesn't help much.

4. It's damn bloody tiring.
Spending the entire day entertaining a baby is no joke. There are only so many things I can think of to talk about, there are only so many stories and songs I can read and sing. Not to mention the night feeds. An 8-hour sleep is a thing of the past. If you're reading this and have not yet given birth, my best advice to you is: SLEEP. You'll miss it.

Of course, motherhood is not all bad. In fact, it is extremely lovely. I just wished I was better prepared mentally and emotionally. The good definitely outweighs the bad and you will catch yourself falling so in love with your little one that you don't know what hit you.

Just keep reminding yourself that things will keep getting better. The days when baby is cranky and you are exhausted, just tell yourself that "this too shall pass". Like my friend told me: Eventually, no matter how cranky, upset they are, they eventually fall asleep.

So yeah, hang in there. Oh and don't beat yourself up if you can't breastfeed due to low supply like me. It doesn't make me or you less of a mother. According to my friend who breastfed her three children: breastfeeding is bullshit and over-rated.

Motherhood has a super steep learning curve so give yourself a break and don't be too hard and harsh on yourself. No one is perfect but we're all on a learning journey. Oh and it's quite normal if your wriggly baby slips into the water in the tub during bath time. And don't worry about that mouthful of water he swallowed, unless you put A LOT of soap into the water, otherwise chances are he's gonna be just fine. :)0

Sunday, May 24, 2015

Formula Milk Review 3 - Nan Ha and Nan Pro

So Similac TC gave my baby greenish poo, S-26 Gold made my baby gassy. Desperate, I asked my girlfriend what she gave her baby, she told me Nestle's Nan.

I zoomed to the supermarket to buy but unfortunately there was Nan Ha and Pro. After considering, Ha stands for Hypoallergenic and seems to be better for sensitive tummies so I got that. Plus, it is more expensive than Nan Pro which has got to mean it is better right?

Wrong.

Baby's greenish poo came back, together with the ultra-smelly-can-kill farts.

Girlfriend told me Ha is the wrong one to buy, that I should buy Pro. I was upset at having wasted another $50 and was very skeptical about buying Nan Pro..i thought of just trying Enfa immediately but I thought "what the hell" and took my friend's advice.

Praise God she was right. Nan Pro brought back the yellow poo and made me a happy mummy once again.

Soon after, a girlfriend also told me she bought Nan Ha and her baby has green poo. I told her to buy Nan Pro and a week later when I saw her again she said her baby's poo has also gone back to being yellow.

Not sure why such differences exist between milk powders but yeah so far baby's drinking Nan Pro and he's a happy baby! :)

Tuesday, May 5, 2015

Formula Milk Review 2 - S-26 Gold

As my previous entry mentioned, Similac TC gave my baby dark green poop. The hubs asked me to let baby try S26 Gold as it has the highest DHA content among all formula milk powders.

It did change my baby's poop from dark green to a yellowish mustard colour (normal poop). However, my baby seemed to be extremely gassy while he was drinking that.

He would cry (more like scream/wail) for quite a fair bit every day, and as he cried we either heard or felt (by placing our hand on his diaper) him passed gas numerous times. After that his crying would subside. His crying was quite bad to the extent that tears would flow down his eyes and he was practically inconsolable. All the massages we learnt online to help him pass gas didn't work. Those few weeks (we tried 3 tins i think) he mostly cried himself to sleep. Like he would cry until he was tired and finally drift off to sleep with tears glistening on his eyelashes. It was quite painful to watch.

So I told the hubs that this can't continue and we need to change formula again.

Next review - Nan Ha and Nan Pro.