Thursday, November 10, 2016

Our journey with Kawasaki Disease and Adenovirus

It started off simple enough, M had a cough and runny nose. The cough was not significant so I didn't think too much of it. Over the week it got worse. Finally on 31 Oct (Monday), the hubs suggested we bring him to the PD. Doc said no wheezing in his lungs so we were sent home with zyrtec and terbutaline.
On Thursday, M's childcare called me to tell me he was running a fever of 37.9 degrees. Brought him home and over the next few days, his fever went up and down. Going as high as 39.4 and as low as 37.6.
On Sunday, having seen his fever continue to spike over 39, we decided to bring him to KKH A&E to do blood test. A chest xray was also done. Doc mentioned he seems to have a bit of lung infection, so we were sent home with antibiotics.
On Monday (7 November), he slept and slept and slept. I brought him back to A&E and he was promptly admitted for lung infection.
On Tuesday, we were informed he has adenovirus, which is a common enough virus and gives people a cold/flu, but it hit M harder than usual. So it has infected his lungs.
Over the next few days, he just continued to deteriorate in front of our eyes. He would sleep for hours on end, wake up but just lie there. Didn't want to eat or drink. It was extremely painful to watch.
On Thursday, doctors confirmed he has Kawasaki Disease, and recommended he be given a dose of IVIG. The dose ended today (Friday 11 November) at 2am. His fever, however, did not subside like it was supposed to. He did not make any significant improvements like other KD patients.
Blood test was done again and his inflammatory markers have gone up. His lungs sounded worse than before. His fever is still lingering around 38.5. Now we are waiting for the blood test for adenovirus count to come back.
Either way it's not looking good for M simply because he is not showing any sign of improvement. Either they are going to start antiviral drugs (that can cause toxicity to his kidneys) to control the adenovirus, or they are going to give him another dose of IVIG.
It's really really painful to watch. To watch him be this sick, this sad. I hope he's too young to understand why he is going through all these poking and feeding of medications. I hope these things done in the hospital has no lasting effects on him.
I want to have my happy M back...I've prayed a lot and am holding on to faith with dear life. Because that's the only thing I have left. I try to tell myself God will heal him in His time, but I can't help crying buckets everytime I see him and remember my happy boy...

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